Well, today was good news and still not so great news. We met with Dr. Lewis to go over yesterday's CT Scan and so we looked at them together. He compared both of them next to each other and Corey's lymph nodes have gotten noticably smaller!! YAY!!! He did say he's still pretty sure this is Sarcoidosis. It's not cancer, but he's still checking his biopsy with the pathologist. There's still nothing growing on it which is a good thing and confirms that this is sarcoid.
The not so good news is his liver count keeps going up, which Dr Lewis says might mean that the Sarcoidosis is in his liver now also. He said that the treatment would be the same so he's decided to keep him on the same dose of medication for now. He also looked at the EKG he had done last Thursday and didn't like what he saw so he's sending him now for an Echocardiogram and a 24 Halter EKG next Friday. We did learn that this disease can affect all other organs, so he's really watching it all. We'll be meeting with the cardiologist now for both tests on Friday afternoon, then follow up with Dr. Lewis on the 17th. Lastly, he's sending Corey for an eye exam since that's another major issue that's associated with this disease. Last week Corey made a comment to me that he was struggling to see the numbers on my phone so I'm glad he suggested that. I didn't think anything of it initially, but now I am.
So...All in all, this isn't cancer, still a scary disease that we hope isn't moving anywhere else but we'll find out. Dr. Lewis did say that he's never seen a case of Sarcoidosis be so aggressive. He said that's why everyone said it was lymphoma because with Lymphoma it can come on quickly. Corey's came within weeks and progressed so fast, where it normally progresses over a long period of time.
I'm glad we are really starting to treat the problem and that I get to see Corey up, moving around and being goofy again! It makes me happy!!
Thanks for the continued thoughts and prayers. I'll be sure to update if anything changes!
Corey and Melinda
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