Well, I know it's been a while since we've updated the blog, but I suppose the time has come to do so! :) About a week ago, Corey had his 24 EKG to check his heart, then last Thursday was his Echocardiogram. We haven't scheduled the follow up to go over the results, but thank goodness with Group Health you can create an account to communicate with your Dr. directly online. We received an email this morning that both tests came back perfectly normal!!! YAY!!! That means his liver is getting much better, his lymphnodes have gone down and his lungs are all cleared up!!! So, Dr. Lewis gave Corey the OK to head back to work finally on 7/1. We're so happy!
Hopefully we'll have an appointment next week, we'll be getting another CT Scan in about 2 weeks just to make sure everything is staying healthy and it's not coming back. Corey is starting to feel the effects of the Prednisone. He's just now starting to get the "puffy" look, but frankly, as his wife, I think it's cute! haha.
Anyway, if there are any other changes, we'll update. Hopefully, the blog will become about other things now that Corey is getting better! We are so happy that he's ok!
Thanks for all the prayers and support!! They have been felt and so much appreciated, words can't even describe!
How Much Longer???
June 29, 2009
June 17, 2009
Update...
Well, today has just flown by. We were a bit anxious for today's appointment with Dr. Lewis because it seems that some of Corey's symptoms were coming back a bit. Last Friday after having a bad morning with the cancellations of his heart appointments and some other stresses, we decided to get away and just go camping over night. That day all day, Corey was having really bad sweats and again at night. They've been coming back a lot again it seems so we were concerned. Then on Sunday he went fishing and came home with very swollen ankles that were starting to hurt a little to walk on. So we called the Dr on Monday and left a message. We decided to wait until today (Wednesday) since we already had an appointment scheduled.
So today, we met with Dr Lewis to go over how he's doing and he actually wasn't too concerned that his symptoms are coming back a little bit. He said that with Sarcoidosis, this is very common having symptoms come back a little bit. He actually said we don't need to be too concerned unless they come back for a long period of time. SO for now we're not too concerned, but be sure I'll be watching him closely! :) Dr. Lewis also lowered his Prednisone dosage so he's only on 40mg now! YAY!!! So we'll see how he does with that. Dr Lewis did say to really watch to make sure they don't come back because if they do, he'll raise it back up again. So I'll be watching.
We also stopped by the Cardiologist to pick up his 24 hour EKG Halter Monitor. So he's wearing that until 1:57 tomorrow afternoon. :) Hopefully that comes back normal becase his EKG wasn't. Next Thursday is when we have his Echocardiogram, so may not have any updates since then unless we get the EKG results tomorrow when we take back the monitor tomorrow.
So until then....Ciao!
So today, we met with Dr Lewis to go over how he's doing and he actually wasn't too concerned that his symptoms are coming back a little bit. He said that with Sarcoidosis, this is very common having symptoms come back a little bit. He actually said we don't need to be too concerned unless they come back for a long period of time. SO for now we're not too concerned, but be sure I'll be watching him closely! :) Dr. Lewis also lowered his Prednisone dosage so he's only on 40mg now! YAY!!! So we'll see how he does with that. Dr Lewis did say to really watch to make sure they don't come back because if they do, he'll raise it back up again. So I'll be watching.
We also stopped by the Cardiologist to pick up his 24 hour EKG Halter Monitor. So he's wearing that until 1:57 tomorrow afternoon. :) Hopefully that comes back normal becase his EKG wasn't. Next Thursday is when we have his Echocardiogram, so may not have any updates since then unless we get the EKG results tomorrow when we take back the monitor tomorrow.
So until then....Ciao!
June 12, 2009
Heart Appointments
Well, I know it's been a week now, but not much has happened. Corey is doing good, up moving around and getting some stuff done while he can as long as he's able to. :) Yesterday, he had an eye exam to see if his eye's are being affected by the Sarcoid. The eye doctor said his eye's are pretty good still. One eye is worse than the other, but not bad enough for glasses yet. That made him happy of course!
Today we were supposed to go to the Cardiologist for an Echocardiogram and to pick up his 24 hour heart monitor. Well, we woke up to a lovely call to let us know they have to reschedule because the tech is out sick today. I was so upset. So we rescheduled and they can't get us in until the 25th now. I went ahead and made the appointment, but then I called Dr. Lewis to see if he felt this was acceptable. He said it's, the main thing he wants right away was the heart monitor. So we have that rescheduled for Wednesday, 6/17 immediatley following his appointment with Dr. Lewis. Then the Echocardiogram will still be on the 25th unless there are any cancellations earlier.
We'll be sure to keep you posted, but for now, no new news except for his eye's being good still. YAY!
We thank everyone for the continued thoughts and prayers.
Corey and Melinda
Today we were supposed to go to the Cardiologist for an Echocardiogram and to pick up his 24 hour heart monitor. Well, we woke up to a lovely call to let us know they have to reschedule because the tech is out sick today. I was so upset. So we rescheduled and they can't get us in until the 25th now. I went ahead and made the appointment, but then I called Dr. Lewis to see if he felt this was acceptable. He said it's, the main thing he wants right away was the heart monitor. So we have that rescheduled for Wednesday, 6/17 immediatley following his appointment with Dr. Lewis. Then the Echocardiogram will still be on the 25th unless there are any cancellations earlier.
We'll be sure to keep you posted, but for now, no new news except for his eye's being good still. YAY!
We thank everyone for the continued thoughts and prayers.
Corey and Melinda
June 4, 2009
Consult about new CT Scan
Well, today was good news and still not so great news. We met with Dr. Lewis to go over yesterday's CT Scan and so we looked at them together. He compared both of them next to each other and Corey's lymph nodes have gotten noticably smaller!! YAY!!! He did say he's still pretty sure this is Sarcoidosis. It's not cancer, but he's still checking his biopsy with the pathologist. There's still nothing growing on it which is a good thing and confirms that this is sarcoid.
The not so good news is his liver count keeps going up, which Dr Lewis says might mean that the Sarcoidosis is in his liver now also. He said that the treatment would be the same so he's decided to keep him on the same dose of medication for now. He also looked at the EKG he had done last Thursday and didn't like what he saw so he's sending him now for an Echocardiogram and a 24 Halter EKG next Friday. We did learn that this disease can affect all other organs, so he's really watching it all. We'll be meeting with the cardiologist now for both tests on Friday afternoon, then follow up with Dr. Lewis on the 17th. Lastly, he's sending Corey for an eye exam since that's another major issue that's associated with this disease. Last week Corey made a comment to me that he was struggling to see the numbers on my phone so I'm glad he suggested that. I didn't think anything of it initially, but now I am.
So...All in all, this isn't cancer, still a scary disease that we hope isn't moving anywhere else but we'll find out. Dr. Lewis did say that he's never seen a case of Sarcoidosis be so aggressive. He said that's why everyone said it was lymphoma because with Lymphoma it can come on quickly. Corey's came within weeks and progressed so fast, where it normally progresses over a long period of time.
I'm glad we are really starting to treat the problem and that I get to see Corey up, moving around and being goofy again! It makes me happy!!
Thanks for the continued thoughts and prayers. I'll be sure to update if anything changes!
Corey and Melinda
The not so good news is his liver count keeps going up, which Dr Lewis says might mean that the Sarcoidosis is in his liver now also. He said that the treatment would be the same so he's decided to keep him on the same dose of medication for now. He also looked at the EKG he had done last Thursday and didn't like what he saw so he's sending him now for an Echocardiogram and a 24 Halter EKG next Friday. We did learn that this disease can affect all other organs, so he's really watching it all. We'll be meeting with the cardiologist now for both tests on Friday afternoon, then follow up with Dr. Lewis on the 17th. Lastly, he's sending Corey for an eye exam since that's another major issue that's associated with this disease. Last week Corey made a comment to me that he was struggling to see the numbers on my phone so I'm glad he suggested that. I didn't think anything of it initially, but now I am.
So...All in all, this isn't cancer, still a scary disease that we hope isn't moving anywhere else but we'll find out. Dr. Lewis did say that he's never seen a case of Sarcoidosis be so aggressive. He said that's why everyone said it was lymphoma because with Lymphoma it can come on quickly. Corey's came within weeks and progressed so fast, where it normally progresses over a long period of time.
I'm glad we are really starting to treat the problem and that I get to see Corey up, moving around and being goofy again! It makes me happy!!
Thanks for the continued thoughts and prayers. I'll be sure to update if anything changes!
Corey and Melinda
June 3, 2009
Recent CT Scan
Well, I know it's been a week since our last update, but we haven't had any new news. Last weekend was a great weekend. Corey was up to fishing even! He went out with his dad, Devin and Alyssa (our neice and nephew) on Sunday to Westport and then again on Monday morning with his friend Carl. I love it when he gets to go because it makes him happy and lets me know he's really feeling better which makes me happy!!
Today, we went in for another CT Scan to see if the medication he's on has stopped the growth of his lymph noes and will have the results tomorrow morning with Dr. Lewis. Corey will also have his blood work done again prior so we're praying that any changes are only for the better, that all of his lymph nodes are either the same or smaller, although Dr. Lewis said they probably would would never go down if it's Sarcoidosis. Hopefully we'll get a definite answer tomorrow.
I'll be sure to update after our appointment tomorrow.
Corey and Melinda
Today, we went in for another CT Scan to see if the medication he's on has stopped the growth of his lymph noes and will have the results tomorrow morning with Dr. Lewis. Corey will also have his blood work done again prior so we're praying that any changes are only for the better, that all of his lymph nodes are either the same or smaller, although Dr. Lewis said they probably would would never go down if it's Sarcoidosis. Hopefully we'll get a definite answer tomorrow.
I'll be sure to update after our appointment tomorrow.
Corey and Melinda
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