How Much Longer???

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May 28, 2009

Update

Well, we started off this morning by going to GH in Seattle and got Corey new Chest X-Ray. It looked like there was just a bunch of stuff that shouldn't be there was there. From there, we went to our appointment with Dr. Lewis to go over the X-ray and everything else/questions that we have from the last week or so. It was pretty much the same info we already knew. He was happy to see that Corey's swelling went down, But didn't seem to excited that he's still sweating all the time. He did say that he still thinks that he has Sarcoidoisis, however the night sweats still aren't very common with that. He said they are very "rare". Another thing that is still making him concerned is that the rate his lymphnodes were growing are NOT a symptom of Sarcoid. He said that by the time he went in for surgery the center part of his lymphnode that was pushing on his lung was dead due to lack of blood supply. The good thing is, his lung doesnt look like it's being pushed by the lymphnode anymore so that's good.

Some of the questions that we asked were about how long he should be having the sweats and pain. He said they should start going away soon if it is Sarcoid, so he'll be checking in on us every few days still. We also asked about the fact that everything we've read about Sarcoid says that his lungs should be affected by this as well, but so far it only seems to be his lymphnodes. He said actually that when he did the biopsy last Tuesday that he put some sort of fluid into the lung area and took it back out to check for the Sarcoid and that it was the best test and that it looked like his lungs were actually being affected, it just wasn't showing up on the CT Scan. He scheduled us for another CT Scan for next Wednesday to compare and see in detail if there is anything new or if anything is growing in the lung area.

So for now, we are still kind of hanging in limbo and treating him for Sarcoidosis with the Prednisone. Dr. Lewis did warn us that he will start to look like a chipmunk (hahaha) and will be hungry a lot so we'll be waiting for that. If this for sure does turn out to be Sarcoidosis, then he'll be on the sterioids at a high dose for at least the next 6 months. I'm still praying that's all this is and nothing else. Hopefully we'll know for sure soon.

Thanks as always for the continuted support and prayers and comments on here. They are truley encouraging and it's so great to get to hear from so many people! We love you all!

Corey and Melinda

3 comments:

  1. Corey... oh happy day! You guys are always in our thoughts and prayers. Glad to hear that you are feeling better. Love you guys! Tammie~

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  2. Corey, you are a trooper. We are praying for you. Cary & Gabrielle

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  3. Hey Corey, hoping this clears up soon. Looking forward to wetting a line with you when you're feeling better. We missed you in Inagua, we worked the "circle of life" in your honor.

    Feel better bud!
    -Ibn

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